Children's Sickle Cell Foundation

Living Well with Sickle Cell®


EXCITING NEWS! We have partnered with Hilton Publishing to produce Living Well with Sickle Cell®, The Parent Handbook as a resource for parents and caregivers.
Written in a friendly, understandable method and using color coded tabs for easy navigation, the comprehensive Parent Handbook contains critical information and resources for parents coping with this painful disease, including:

  • SCD: What to know and what to do
  • About your baby
  • Communication & people who care for your child
  • When to call the doctor and when to go to the ER
  • Information for teachers and childcare providers
  • Frequently asked questions about SCD
  • Record keeping & resources
Available at Amazon and