Family Support
Healthy Family Sessions are a
monthly family-centered program
where adults, teens and children are
able to come together to share their
experiences and receive information on a topic of their choice.
Previous Topics Have Included:
•
Nutrition
•
Family Health History
•
Parent Advocacy
•
Pain Management
•
Homeownership
The objective of this program is to provide a place where parents
are able to voice their concerns and become empowered to face
the challenges of raising a child with sickle cell disease. Many
parents gain a sense of hope and encouragement through this
sharing opportunity.
Healthy Family Sessions are open to the entire family (siblings,
grandparents, aunts, uncles, cousins etc) and even playmates. By
extending our programming beyond the affected child and his/her
parents, the family will be able to have a wide support net of
family and friends aware of this unique health situation, the child
will not feel singled out because of their illness by peers or
siblings, and the negative stigma associated with SCD will be
progressively removed.
A meal and childcare is provided and transportation assistance is
available.
Healthy Family Sessions are facilitated by The Hill House
Association and funded in part by a grant from McAuley Ministries
and from the City of Pittsburgh through the Community
Development Block Grant Program (CDBG), Luke Ravenstahl,
Mayor.
Education Support
The Free Education Support
Program is designed to assist
children with sickle cell disease
(SCD) to maintain continuity in their
education when they are absent from school due to illness. Many
children are hospitalized as a result of the complications of sickle
cell disease. Hospitalization is a hard time for children with SCD
and their parents.
On average a school aged child with SCD may miss 29 days of
school per year due to illness that may or may not include
hospitalization and while recovering at home. This creates a
dilemma for children, parents, social workers and educators. At
these times children may not receive the support that they need
to make a smooth transition back into the classroom.
CSCF, Inc., in collaboration with the Pittsburgh Public School
System and Children’s Hospital of Pittsburgh’s Sickle Cell
Program, offer this program to ensure that every child with sickle
cell disease receives the proper support to encourage their
educational success.
How It Works
•
This Free program is available to all children with SCD
in the Pittsburgh Public School District and other
participating school districts.
•
Enroll you child in the Education Support Program.
•
Call the Education Support Coordinator (ESC) when
your child becomes ill at home or in the hospital.
•
The ESC contacts your child’s teachers and school
counselor to ensure that your child receives their
schoolwork and assignments.
•
You may have the Children’s Hospital social worker
contact us to enroll your child at the hospital.
•
There is no limit to how many time you can use this
FREE program.
•
Complete a parental survey to give us feedback so that
we may better serve you.
Check our Events Calendar for dates and times.
Living with Sickle Cell - Spoken Word Video
CBS Cares - Sickle Cell PSA
Sickle Cell website for Kids
links