Living Well with Sickle Cell®
NEW PARENT HANDBOOK
EXCITING NEWS! We have partnered with Hilton Publishing to produce Living Well with Sickle Cell®, The Parent Handbook as a resource for parents and caregivers.
Written in a friendly, understandable method and using color coded tabs for easy navigation, the comprehensive Parent Handbook contains critical information and resources for parents coping with this painful disease, including:
- SCD: What to know and what to do
- About your baby
- Communication & people who care for your child
- When to call the doctor and when to go to the ER
- Information for teachers and childcare providers
- Frequently asked questions about SCD
- Record keeping & resources